Last Gift: Ethical Considerations for HIV Cure Research at the End of Life
Guest Speakers
Karine Dubé, Dr.PH
Associate Professor ǀ UCSD School of Medicine Division of Infectious Diseases and Global Public Health
Sarah Gianella Weibel
Associate Professor in CFAR – Center for AIDS Research, Department of Medicine & Division of Infectious Diseases at UC San Diego.
Jeff Taylor
Community representatives, community advisor to UC San Diego AntiViral Research Center Community Advisory Board and the Community Scientific Subcommittee of the AIDS Clinical Trials Group, and member of the AIDS Treatment Activists Coalition’s Drug Development Committee.
Susanna Concha-Garcia
Senior Community Outreach Supervisor for the UC San Diego HIV Neurobehavioral Research Center (HNRC).
Selected Resources:
Ethical and practical considerations for interventional HIV cure-related research at the end-of-life: A qualitative study with key stakeholders in the United States.
(Kanazawa et al 2021)
Watch Last Gift Participant Anthony Bennett’s Story
"[It] is now my responsibility to fulfill that wish:" Clinical and rapid autopsy staff members' experiences and perceptions of HIV reservoir research at the end of life
(Perry et al 2020)
Film:
Recorded May 4, 2022
For more about The Last Gift, please see website resources, please see http://lastgift.ucsd.edu
Altruism among participants in Cancer clinical trials. Clin Trials. 2011;8:616–23
(Truong et al 2011)
Perceptions of Next-of-Kin/Loved Ones About Last Gift Rapid Research Autopsy Study Enrolling People with HIV/AIDS at the End of Life: A Qualitative Interview Study. AIDS Res Hum Retroviruses.
(Dube et al 2020)
What is community? An evidence-based definition for participatory public health. Am J Public Health.
(MacQueen KM et al 2001)