Informed Consent, Genomics Data, and Health
Guest Speakers
Anthony Magit, MD MPH
Medical Director UC San Diego Office of IRB Administration
Clinical Professor of Surgery, Rady Children’s Hospital
Dr. Pratheesh Sathyan
Illumina, Medical Affairs Head of Oncology
Selected Resources:
When it comes to genomics research, Institutional Review Boards (IRBs) are central to ensuring protections are in place to protect individuals, families and communities.
This is not a static process or work simply left to researchers. New technologies, shifting demographics and changing societal expectations point to a role for all members of society, as IRBS work diligently to meet new challenges.
US National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research
(Belmont Report)
International Ethical Guidelines for Biomedical Research Involving Human Subjects
(Council for International Organizations of Medical Sciences)
A Critical Moment in Bioethics: Reckoning with Anti-Black Racism through Intergenerational Dialogue.
Implementing Precision Medicine: The Ethical Challenges
(Korngiebel et al)
Tensions in ethics and policy created by National Precision Medicine Programs
(Minari et al)